Keep Jamie Smiling!!!

Discussion in 'Charities and Welfare' started by fishfingers, Nov 24, 2009.

Welcome to the Army Rumour Service, ARRSE

The UK's largest and busiest UNofficial military website.

The heart of the site is the forum area, including:

  1. SCOTS solider John Inglis was preparing to join the war effort in Afghanistan - until his four-year-old son faced his own life or death struggle.

    Jamie (age 4) was diagnosed with an abdominal tumour on Apr 1st as he had suddenly become unwell in nursery. I was in the UK on an inspection in Catterick. He had no obvious symptoms of any illness before other that low level symptoms. My wife called me and within 4 hours the Army Compassionate cell had arranged flights to Dusseldorf Uni Klinic. After several days they diagnosed Neuroblastoma stage 4 and found out that it was MYCN amplified(aggressive form) The cancer had infiltrated the bone marrow as well. His prognosis was given to be 20-30% survival so we were devastated. The MIGB scan revealed that it had spread from his kidney into the femurs of both legs and around the orbital in his eye and some of the lymph nodes.

    He started chemo after all the tests for high risk Neuroblastoma. He was very sick at first and we were in hosp for 7 weeks without break. The tumour was so big that it started to affect his breathing and he would not eat or drink or hardly move in his bed. After a month or so he started to improve a little and gain some mobility with physio. After several blocks of chemo he started to respond well to the treatment. After block 6 he became very ill and developed pneumonia and he suffered a sepsis which required ventilation on an ICU for two weeks. For 24 hours his situation was very critical and we were very close to losing him but he managed to pull through. Two weeks after this incident he received his Op to remove the affected kidney and tumour which was carried out successfully however there are still residual tumour cells remaining. He has now had 7 of 8 blocks of chemo and will then receive high dose to complete his treatment.

    During his treatment I was posted from Herford to Monchengladbach were my wife works as a teacher at JHQ in Rhine Military Complex so we could be together as a family and also in closer proximity to where Jamie was receiving his treatment in Dusseldorf. The army welfare, local community and friends have been very supportive and the military health service (British Forces Germany Health Service) have helped us right from the outset. The hospital facilities and staff are also fantastic. I have been given time off work since April to look after Jamie as we had a baby girl in Jul and my wife (Vick) could not possibly manage both. I would have probably deployed to Afghanistan had my son not been ill.

    Even though Jamie has responded well to the initial treatment the chances of his cancer relapsing over the next year is very high(40% of cases). The relapse is normally caused by microscopic cells which have survived the chemo and is referred to as minimal residual disease (MRD). Unfortunately when the children relapse the prognosis for survival is reduced significantly and the chance of a cure is very small. A recent antibody trial in the States has been very successful as it targets the MRD and improves the chances of survival by 20%. This treatment may well become a standard regime in the future, however, Jamie does not have time as he will require this treatment within 90 days of completing his high dose which he is due to complete by Feb 2010.

    This potential life saving treatment is available at the Memorial Sloan- Kettering Cancer Centre in New York. This treatment, however, doesn’t come cheap. We need to raise £250,000 before Jamie can be given the potentially life-saving therapy.

    Please help our son and Poppy's big brother, Jamie.
  2. Incoming.........good luck with it mate, keep punching.
  3. Many thanks Banker
  4. hope you don't mind be bringing this up again.
  5. Keep smiling and keep on fighting big man !! :D
  6. Cash inbound on pay day. Let's push hard on this one and help Jamie reach his target. Good luck with the treatment, if I can find any other avenue to raise funds for Jamie it will be done.
  7. Bump.

    All our "fines" from our Cpl's mess Xmas ball is heading to this very worthy cause. Good Luck.

  8. Can I bump again for this worthwile cause. John Inglis is a Colleague of mine and a friend, and as a carder we are doing as much as we can to raise this desperatly needed money. I appreciate that its christmas and money is tight, but any contribution is gratefully recieved
  9. he a Scaley?
  10. Hols4Heroes

    Hols4Heroes War Hero Good Egg (charities)

    Fishfingers, can you drop me a PM please mate.

    Wondering if there is anything we can do to assist.
  11. Medic
  12. Good work.
  13. Can this be put onto a more visible and/or better visited thread grouping so that more posters can be made aware and have the opportunity to contribute?
    Many Thanks
  14. Done, good luck lad, fingers crossed that it all goes well.