Anti-Inflammatory and Opiate help?

Ritch

LE
I'm posting this because I've had it with my GP and pain clinic - I don't seem to get straight answers.

I've got loss of lumbar lordosis, arthritis of my spine, sacro-iliac joints, hips and legs and I'm on fair whack of pain meds, including morphine, fentanyl and other diazepam.

Recently, the pain is getting worse. I can't sleep at all, I've had four trips to A&E in the past fortnight and it's getting me down.

I was wondering if any people on here take opiates and other anti-inflammatories (not Diclofenac) and if they work well?

My GP and consultants are just passing me from pillar to post and I've even had a scout of pain forums for some advice and it all seems to be conflicting.

Any advice would be appreciated.
 
T

Tinman74

Guest
Aids mate, worked for dirt_diver.




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Ritch

LE
I'm on my second now. The one I'm at now, the consultant said: "When you come here, it's the end of the road really."

Inspires confidence(!)
 

Ritch

LE
Thanks Jarrod, I'll have a look.
 

Ritch

LE
They run a type of pain course, worth a go.
I've just seen, yeah. I've had three of the pain management courses. I try the techniques but it doesn't work when the meds don't keep their end of the bargain.

I'm taking double of the prescribed amitriptylineto try and get a few hours at night.
 

jarrod248

LE
Gallery Guru
I've just seen, yeah. I've had three of the pain management courses. I try the techniques but it doesn't work when the meds don't keep their end of the bargain.

I'm taking double of the prescribed amitriptylineto try and get a few hours at night.
Well maybe that place will use some things that are doses that aren't licenced or drugs that aren't licenced.
 

Country Joe

Old-Salt
There is a Chinese medicine shop with alternative therapy near me, very interesting window to look at, with all the ingredients in clear jars on display. There is a print on the window with all the treatments that can be provided, and a human body diagram with a lot going on as well.

Chinese medicine has been on the go for over 2000 years (of the top of my head) so it can't be all bad.

Hope things get better for you soon.
 
You could ask about PCA (patient controlled analgesia). It's normally used for the control of post op pain and end stage pain in terminal illness.

They'll put in a spinal line, and through that you can self administer whatever is prescribed. It's done through a small machine, that's pre-set and pre-loaded. That way you can't OD.

There's also Fentanyl patches or even an IV mix of Ketamine and Morphine. This is usually given with Medazolam and an anti emetic such as Ondansetron.

That's all worth discussing with the pain clinic. Good luck.
 

Dicey

LE
I'm taking double of the prescribed amitriptylineto try and get a few hours at night.
Don't know if this will help but here's my experience of managing pain.

I was taking 3 amittriptyline plus a sleeping tab. every night to try to get some sleep. At my wits end I tried all sorts of combinations/cocktails until I found that six (later eight) hourly doses of ibuprofen eventually got the nerve pain under control. You HAVE to take them regularly and it takes several weeks before they kick in...I very nearly kicked them into touch before they started working. I buy the cheap ones and go to several different Chemists to get 3/4 packs at a time. Even after 5 years they're still working for me although the pain hasn't completely gone but it's very rare when it becomes unbearable. It may or may not not work for you, don't know. I do know that my GP was less than impressed when he asked why I'd stopped taking the amittriptyline.

I do know of someone who suffered agony after an accident and was taking over twice the recommended doses of the various increasingly stronger pain-killing medication/drugs he was prescribed. None of it worked.

He smokes marijuana joints now as he says they are the only thing that gives him pain relief - he swears by them. This guy is no hippy/cokehead/lightweight and probably one of the last people you'd ever suspect of 'doing drugs'. Haven't ever tried it myself but if I thought it would have helped, I'd have smoked it all day long.
 
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If you're going to take large doses of NSAIs then it would be wise to chase it with Omeprazole. That will help to protect your gut from the effects.

Be aware that long term use of NSAIs will make you hypertensive, so you may be at risk of CHD as a result.
 
I've just seen, yeah. I've had three of the pain management courses. I try the techniques but it doesn't work when the meds don't keep their end of the bargain.

I'm taking double of the prescribed amitriptylineto try and get a few hours at night.
I was offered 7 times the dose of amitryptilene (or however you spell it) and decided bollox to this...

I suffered a pain management course - waste of space as all they taught me was what I'd learned for myself - but it concluded with a visit by the local hospital's Pain Nurse. I'd been getting Tramadol initially which I swapped for Cocodamol as I felt safer driving with it, neither of which helped much with the pain. The Pain Nurse suggested to my GP that I try Gabapentin. I consider it a magical cure (almost) though the dose needed to be built up over time as the efficacy wears off. I now only take Cocodamol when I've been active rather than all the time and find it much easier to get sleep.

So, a tick for Jarrod but not quite enough detail to get a "like". Sorry.
 
T

Tinman74

Guest
Agree with the earlier post about ibruprofen, I get strange looks from the chemist in asda, as I buy 96x400mg at a pop.

I find piggy backing it with 2x30mg of codiene helps.


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Ritch

LE
Thanks for the suggestions guys.

I've had thoughts about trying alternative medicine in the past and I think I'm that desperate now, I'll try anything.

I've had PCA's before post operatively and found them good but I didn't know you could have them for normal pain management uses. I think I'll steer the special ist in that direction.

My pain medication list reads as follows:

Paracetamol
Tramadol
Diclofenac
Baclofen/Diazepam
Oramorph
Fentanyl patches
Pregabalin (I used to use Gabapentin)

I've been on NSAI's for a good decade now and didn't know that about hypertension.

I'd like to see about trying narproxen (Sp?) as an anti-inflammatory - after all, what harm could it do.

Once again, Thanks for your suggestions. I've now got a list compiled to take to the next appointment.
 

jarrod248

LE
Gallery Guru
I was offered 7 times the dose of amitryptilene (or however you spell it) and decided bollox to this...

I suffered a pain management course - waste of space as all they taught me was what I'd learned for myself - but it concluded with a visit by the local hospital's Pain Nurse. I'd been getting Tramadol initially which I swapped for Cocodamol as I felt safer driving with it, neither of which helped much with the pain. The Pain Nurse suggested to my GP that I try Gabapentin. I consider it a magical cure (almost) though the dose needed to be built up over time as the efficacy wears off. I now only take Cocodamol when I've been active rather than all the time and find it much easier to get sleep.

So, a tick for Jarrod but not quite enough detail to get a "like". Sorry.
Well the gabapentin or pregabalin can give euphoria, that's why it will wear off. I think they're being used too much and we will have the problems we had with Valium.
I think I'd rather stick to a short lasting and long acting opioid and keep the amount of drugs taken smaller. The poster I think needs very specialist help.
 

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